How is she doing?
Multiple times a week, people who know about Clio’s cancer ask me how she’s doing. And I truly appreciate their asking. I’m just never quite sure how to answer. I mean, I know what words to say. (Me...
View ArticleReally, Cancer? REALLY??
It was bad enough that you had to come along and pick on a beautiful, five-year-old girl — make her feel awful, put her in the hospital, cause her to miss out on going to camp and starting kindergarten...
View ArticleBut on the bright side…
I was feeling pretty upset when I wrote my last post, about Clio’s blood clot. Upset and frightened and angry. These feelings come with the territory when you have a child with cancer. But there are a...
View ArticleThey Get It
1. Elsa Gets it I was so freakin’ proud of her last week. As you know if you follow my Facebook page (and if you don’t, you should! We have fun there!) we have a fabulous young woman, Katelin, who’s...
View ArticleHelping Cancer Families and Knocking on Wood
I’m very pleased to have a post up today over at the Dana-Farber Insight blog about how to support families dealing with childhood cancer. Take a gander if you’d like. I’m also very pleased that so far...
View ArticleOperation Paperback
So, the paperback of my memoir, Double Time, comes out just shy of a month from now. I’m quite excited about this. But I admit that I haven’t been as gung-ho about it as I probably would be if, you...
View ArticleNo Mercy from the Cancer Gods
I had a feeling this was going to happen. Really, it was only a matter of time: First Alastair got sick with a bad cold, about a week ago. Then Elsa caught it — with a fever — last Friday. Then it was...
View ArticleDispatch from the 6th Floor
Well, we’re still here at Children’s. It will be a week tomorrow (and we’ll almost definitely still be here tomorrow). Fortunately, Clio is feeling a lot better than she was initially. She’s coughing...
View ArticleAbout last week…
It’s hard to even know where to begin. And I apologize in advance for this long, rambly post — it’s one of those where I’m kind of just getting it all down, not editing or culling much along the way....
View ArticleRefreshed and Renewed
Today is a good day. A day when I’m feeling — yes — refreshed and renewed. It’s 65 degrees and sunny outside. I went for a run this morning. I’ve got lots to do, but not so much that I’m feeling...
View ArticleHappy Campers
We had such a nice weekend. We spent it at the Hole in the Wall Gang Camp in Ashford, Connecticut — the camp Paul Newman founded as a place for kids with serious illnesses to get away from their...
View ArticleRunning, Rocking Out and Rallying
When I picked the girls up from school today, Elsa said that I could not look in her backpack, because there was a surprise in there, and she wasn’t going to say what it was, or who it was for, but I...
View ArticleWelcome to Cancerland. (It Gets Better)
Since I started writing this blog, and since word of Clio’s diagnosis began spreading among my inner and outer circles of friends, I’ve heard from at least a dozen people whose children (or...
View ArticleTell Me All Your Thoughts on God
Sorry, now I’ve got that song in your head. That is, if you listened to the radio in the 90s. I had a good talk with our church’s minister a couple of weeks ago. She’s reached out to me a few times...
View ArticleThis Time Last Year
It’s hard not to play the “this time last year…” game when there’s been a big change in your life. I remember doing it when my girls were a few months old: This time last year, I didn’t have kids yet!...
View ArticleAm I bringing you down?
As you may have noticed, I’m pretty open when it comes to talking about the fact that my daughter has cancer, and don’t hesitate to share some of the specifics. This is true offline as well as online....
View ArticleYe Olde Blog Archives
Every so often, people ask me if there’s a way to go back and read my old blog posts from my blog Baby Squared on Babble, where I blogged from mid-2007 (when my girls were 6 months old) through Summer...
View ArticleCancer Perk! An Afternoon at Fenway
I won’t lie to you. There are some pretty sweet perks that come with having a kid with cancer. On Saturday, we got to go to Fantasy Day at Fenway Park with the gals. It’s an event to benefit the Jimmy...
View ArticleEmpowered & Helpless
1. Empowered For a long time, Clio has stated her desire and intention to be a professional musician, just like her dad. Actually, as far as she’s concerned, she is a professional musician. And she has...
View ArticleCancerversary
One year ago today, I brought Clio to the ER of our local hospital with a fever of 104.5. Several hours later, we found ourselves at a hospital in downtown Boston, being told that it was 99% certain...
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